What a horrible test!
- I am 37 and 16 weeks pregnant with my first child . My afp came back low ..... showing probability of Downs. My Dr. tells me there is a 98 % chance the baby is fine but he moves my level 2 ultrasound up asap and to a hospital 100 miles away rather than do it locally and I am not supposed to worry? I am freaking out. It has been a week and the ultrasound is in 2 weeks on my birthday! I have quit telling people I am pregnant even and am afraid to even enjoy it.
- I'm 18 weeks and my test cane back positive. 1/661 chance for Down Syndrome. I'm so stressed.
- —Guest yomie
I am pregnant at 43 years old
- I took the triple test. They told me that I have high results in down syndrome. I am very worried because I don't know if this test is right or wrong. I am in my 15th week in my pregnancy.
- —Guest nadia
- This is my second child. I'm now 13 weeks and my AFP came out high for DS. The result was 1/119. The doc pressured me for a CVS but I preferred an amnio at 17 weeks to be safe. (The doc did explain that at 12 weeks, there is a much higher risk of miscarraige while the amnio was much safer.) Reading this forum has given me great hope ! Thanks all the great moms out there !!!!
- —Guest Adeline
- I think this test is silly and they need to not give it. I tested positive for Downs and was told on a Friday and had to wait all weekend till I could get a level 2 ultrasound done. I didn't want a amnio. My healthy daughter was born and everytime I look at her perfect face and how beautiful she is I get so upset on how these doctors can order a test that tests false positives 98% if the time. I also wonder how many parents aborted there babies because of this test. Its just sickens me that they cant fix it and make it more reliable.
- —Guest Kim
This is so difficult and scary for me
- Today my OB office called, I am just about 20 weeks pregnant and my AFP MoM is 2.67 screening positive for a Neural Tube defect. We have a 2.5 year old daughter, I am 32 years old, a Pediatric RN, and was called while at work...today. I am so nervous...there are varying levels of severity and so much is unknown until we can see the specialist for a 3-D US and genetic counseling, I do not have any of the risk factors. With my medical knowledge, having given care for children with NTDs , and listened to the parents as they go thru the emotions... I am so worried about the worst possibilities, how my husband and I can make the right decisions for us if needed. I am just praying that either everything will be fine or that we can find strength. Us and visit with the specialist is Thursday. I wonder if there is a genetic connection and wondering if the gene(s) associated with NTD are maternal or paternal. We have no history or knowledge of my husband's fathers side.
- —Guest Chirs
I don't know if I should be stressed...
- I'm 44 and pregnant with my 3rd child. At 12 weeks we had the ultrasound which showed everything looked good, could see the nose and neck thickness was fine. I had the blood test and that came back abnormal, they said based on my age, I had a 1/84 chance of having a baby with downs. I don't want to do the amino, we'll take whatever God gives us.
- —Guest Angela
I wish I hadnt taken the test
- I am 17 weeks and my AFP showed high risk....and my heart broke. I don't even know, how or whether I should tell my husband because he will completely freak out. But, I know, in my heart, if GOD has given life to this baby, there is a good reason. I will welcome the baby with or without any syndromes and stop all further testing. I am blessed and will stay positive through my pregnancy despite the test. I think today's medicine just complicate matters and create unnecessary stress.
- —Guest Jaz
AFP Positive result
- Had blood test done at 12 weeks then second phase at 16 weeks.. I was already scheduled to see a perinatologist since I am 39 and this is my 4th child. Ive had three healthy boys. I got the call Monday that my results were abnormal showing 1 in 24 chance of DS..My appt for the stage two U/S was Thursday ( today) I had the U/S and and amnio down and wont know the results for 10-14 days! I'm in such agony and don't know what to do. This baby is suppose to be a girl. I just pray I have made the right decision and she is healthy. I really needed to know so I can prepare myself and my other children for her arrival. I will repost with results when I get them. I do find some comfort in all the comments I read but still have a fear. The medical profession is NOT perfect and we should always ask questions and research everything! Everyone is different and so is every pregnancy!
- —Guest Kimberly
Take the test
- I initially didn't want to do this blood test because like everyone else didn't want the extra worry. I thought everything was fine. I ended up taking the test in the end. It showed I had a 1 in 43 chance of my baby having Trisomy 18. I still didn't believe anything was wrong. At 22 weeks I had am ultrasound. She saw that my baby had too much fluid on the brain. Needless to say I ended up getting an amino done. She had Trisomy 18. I was heartbroken. I would recommend everyone to get this test. I was prepared for when she was born stillborn. I carried her for 37 weeks and wouldn't change a thing.
- —Guest kim
Even docs are uninformed!
- The risk ratio is based primarily upon age, and the blood results only create a multiple to be applied to that test. So while my age-only risk (at 41) is 1/68, the triple screen result lowered that risk by a factor of 2 to 1/131. Also the strongest classic downs indicator in the triple screen is a low AFP and mine was high. Nonetheless my doc just reads the automated summary at the bottom of the lab report - "you have heightened risk for a Down baby and should seek genetic counseling immediately" and pressures me for an amnio.
- —Guest Leah
Sick with fear
- Just had my quad screening at 15 weeks and it's abnormal. 1 in 10 chance of Down Syndrome. I took this test with both my other children and it was always neg. Kinda wish I hadn't taken if now. It takes the joy out of being pregnant. My ultrasound is 3 weeks away so I have to 3 weeks until I get a little more info and the rest of my pregnancy to worry.
- —Guest Tracy
- Thank G-d, my geneticist just called to give me wonderful news, my baby girl is ok!! My AFP had come up positive 1/100 for Down. Against what I initially had wanted, I had an amnio because the uncertainty was too stressing. This will be, G-d willing, our first child and am so grateful to G-d for this result. Since this is my first pregnancy I had no idea what taking the AFP entailed emotionally, I have been through a nightmare with this. I would not bother to have this test again, I would just get an amnio. Please G-d that all the anxious mothers going through this shall be blessed with only good news.
- —Guest Esther
This is a never ending nightmare.
- I am pregnant with my first child and 37 years old. I never intended on having an amnio and had no idea what the AFP test entailed and was given very little information on it. I thought it was a reliable blood test and so didn't hesitate. Little did I know the hell that ensued. The test came out positive for Down. The midwife told me not to worry that the sonogram would give us a clearer idea of the baby's health. So I had two of them done in a time spam of about three weeks. The last sonographer told me she saw no indication of Down on the baby and that I should not worry. But yesterday I went to the genetecist and he told me that the sonogram is nothing with regards to determining Down. He told me I was 1/100 chance of Down and so decided on the amnio because all of the uncertantity is putting too much stress on me and the baby. G-d willing everything will be fine. I will never take the AFP again.
- —Guest Esther
- I was 28 when pregnant on my son and had a AFP that showed a 1 in 15 chance of my son being downs it was the most awful feeling. I have a cousin with downs who is dearly loved but her life is full of difficulties and will never be independent of her parents. my whole world fell apart at first as the shock was enormous. I went on to have an amnio which was a horrible and painful experience but I had to know, I had to be prepared. Thank God the results came back that my child was normal and healthy, he is now 6 yrs old and I often think about that experience and I regret with all my heart ever having the AFP test done. I'm pregnant again at 14 week and 6 yrs older than my 1st pregnancy and wouldn't even dream of having an other AFP test. If anyone is thinking of having an AFP test done please, please, do yourself a favour and think very hard about it first. i think this test needs to be more reliable because it dose cause unnecessary worries in cases of false positives and high percentages.
- —Guest sandra